kw: book reviews, nonfiction, psychiatry, mental illness, bipolar, recovery, twelve step programs
After reading Unshrunk: A Story of Psychiatric Treatment Resistance by Laura Delano, I became even more thankful that I escaped the depths of psychiatric treatment. Psychiatry is a black hole; getting in is easy, while getting out is usually impossible. Let me settle two pieces of business before going further.
First, a piece of extremely serious advice: If you are feeling depressed and you seek the help of a medical or psychiatric professional, do not ever loosely say you have been thinking of suicide. To be clear, if suicidal thinking dominates your thinking all day, every day, and has done so for as long as you can remember, then it is worth telling this to a professional. Otherwise, beware: if a psychologist or psychiatrist becomes convinced that you are likely to harm or kill yourself, they are required to commit you to psychiatric care in a mental hospital. That's one way of dropping straight into the black hole. If you have no trusted friend or family member, contact the Inner Compass Initiative, founded by Laura Delano. Something to ponder: psychiatrists are people, with the same foibles as all of us. Many of them got into psychiatry because they wanted to find out why they had certain experiences (see image following!).
Second, a very brief mental history of myself. I was diagnosed with "Bipolar II Disorder" at age 54. In retrospect, it made certain old stories make sense. During my K-12 years, I would occasionally "flip out". Otherwise I was a quiet kid, sometimes bullied but too big for the bullies to feel safe going too far. The school I attended in grades 4-6 had an abandoned chimney, the ruins of a demolished house, at the back of the property. One day in 5th grade I led a group of kids to "Play Santa Claus" by climbing down the chimney. We returned to class covered in soot. On a few other occasions I was overcome by a burst of energy and spent the lunch period running through a stand of Sumac, holding a branch and whacking the plants. During the high school years I became the family's firewood chopper and splitter. This continued into college; it is a great way to blow off steam. During my first year at college, on two occasions I was overwhelmed by overwork—I tend to take on more work than I am capable of completing—and wound up in the school clinic under sedation. As an adult I wondered how I could be so moody, so unpredictable, but only for short periods at long intervals. I distinctly remember reading an article that quoted several creative people who discussed their swinging moods (at that time the usual term was "Manic-Depressive"); one writer expressed it this way, "When I am up, I write, and when I am down, I edit." I sat back and thought, "Oh, neither mood swing is essentially bad because both can be useful." At age 53 I made a new friend. He told of spending 10 years taking Zoloft, but being concerned that it wasn't working well any more to control his experiences of major depression. He also told of sometimes spending three days obsessively cleaning his apartment, or seven hours washing a car. I said, "That sounds manic (by this time I knew a little about Bipolar "disorder"). Why don't you mention these things to your shrink the next time you see her?" He did so and was switched from Zoloft to one of the anticonvulsive drugs that are useful in mediating Bipolar mood swings. He was re-diagnosed as Bipolar I (stay tuned). The next time I had a depressive period of my own, that had come on without reason, I spoke to my doctor about it. He prescribed a low dose of Zoloft. At the follow-up appointment a month later, I was high as a kite. He said, "OK, this is mania. Let's try something different." Zoloft is an upper, not a mediator. I don't recall which drug was used. It was apparently helpful, but I began to need a daily nap and I gained some weight. I went to see a psychiatrist, one of only two that I consider competent, named Valentine. She explained more, saying that I seemed to be between Bipolar II and Cyclothymia, and suggested using half the dose of the medication. Six months later, I found that she had moved out of state. There followed a period of yearly visits with four different psychiatrists, all "bottom of the barrel"; I could tell they were crazy, and had got into psychiatry mainly to figure out their own issues...and failed. One of them wanted me to switch my medication to Depakote. I said, "I know someone who takes that. He gained 90 pounds. I already feel bad about being a little overweight. How will this keep me from getting suicidally depressed?" I stormed out and didn't pay the bill when it came. Finally I got another competent psychiatrist, who switched me to Abilify, a low dose, saying, "This will keep depression from going too deep, and allow you to have a little 'fun' when you're manic." I deduced that it was a milder form of Zoloft. It worked quite well, but I still needed a daily nap, and continued to gain weight. Then one day, going to a scheduled appointment, I found his office locked and dark, and nobody in the building knew what happened to him. I had wanted to discuss with him how I could stop the meds completely. I had been taken by a friend to get acquainted with a man who had a severe case of Bipolar I, but had weaned himself off all medications, with his wife's help. Rather than try to find another doctor, I decided, "I'm done with this." I had another month's supply of Abilify. I cut the pills in half and took a half dose for a month, then cut the remaining half-pieces in half and used them up over the next two months. In the meantime, I consciously practiced awareness of my mood. Like the writer, I have things I can do when I am "up", which I call "open", and other things I can do when I am "down", which I call "closed" or "reserved". Now I am 78, off meds for more than 15 years. My wife, who has put up with me just over 50 years, is more relaxed: I am more stable. I thank God I was never institutionalized, and never put on a 4- or 5-drug cocktail. Such regimens are an admission of failure to find an effective treatment.Now to the book. Ms Delano is apparently prone to overreaction to emotional stimuli. It is common for a young girl to one day look in the mirror and think, "Who is that? Who am I?" In her case, at age 13, it seems to have led to a panic attack, or something very like one. She became edgy and uncooperative at home, and after some time her mother took her to see a psychiatrist. She got a diagnosis (Bipolar) and a medication. That was the entry gate to fourteen years of increasing misery, including a few periods in mental facilities, yet she managed to complete a degree at Harvard. At one point she committed suicide but was rescued.
Along the way she was given various diagnoses—Bipolar wasn't mentioned after the first year—culminating in Borderline Personality Disorder with Treatment Resistance. Those six words really mean, "We don't know what the Hell is going on, she's just impossible to handle." This exposes the darkest part of the underbelly of psychiatry. You can't get away with stopping a psychotropic drug instantly. It is like a heroin addict stopping "cold turkey". Withdrawal symptoms are dreadful, and can kill. I experienced a little of that the few times a drug was switched for me. She had it in spades! When a doctor recommends "tapering off" a drug, they typically recommend a two- to four-week taper. That's too fast. Half a year to a year is better, and in the case of Lithium, it may take several years to wean your body from lithium toxicity. Remember this principle: withdrawal symptoms are very similar to the condition being treated. This does not mean relapse. It means the tapering needs to be more gradual.
Side note: I have read a few times that "the therapeutic window for lithium is narrow," which means that the amount that helps is only a little less than the amount that harms. Actually, that window is negative: The "help" that lithium affords is actually a side effect of lithium toxicity. Lithium "helps" by damaging your nervous system, reducing a harmful syndrome by reducing everything! This is compounded by growing lithium dependence, which takes years to shake. See the "Tapering" section of Inner Compass for more information.
Chapter 34, "Critical Thinking", deserves special mention. It outlines the sad circumstance that psychiatry has become big business. The largest proportion of political lobbying (bribery) is by the pharmaceutical industry. Doctors of all kinds, not just shrinks, are aggressively pushed (sometimes coerced) to push pills at every juncture. Analyzing the DSM (Diagnostic and Statistical Manual, the "psychiatrist's Bible"), the author finds that many of the items listed share more with fads than with facts. Assertions without appropriate evidence, and suppositions without logical reasoning. Maybe you've heard that "chronic depression is an imbalance in brain chemistry." Would it surprise you to learn that no such imbalance has ever been measured? Never, in spite of much trying.
A word about tapering. Drugs are dispensed in sizes of 1,2,4 or ½,¼, etc. If the basic dose is 10 mg, and you're on 40 mg, there's no 30 mg to taper to. And you may need to reduce from 40 to 35 for a week or two, then 30, and then 27, 25, 23, and so forth. What can you do? I suggest pill splitting. My wife takes a statin drug for cholesterol. But she doesn't need much. The smallest available dose is 10 mg. She splits it to 5. For a while she cut the pills into 3 pieces, but that wasn't quite enough. So if you need to go from 40 to 35, what do you do? Have the doctor (it might take a lot of negotiation) prescribe 20's and 10's and 5's. 20+10+5=35. Next reduction, 20+10=30. Then split a 5, so 20+5+2½ = 27.5, and so forth. You get my point.
I'll leave it to you to read this book. If you have any kind of "personality disorder", or know someone who has, get it and read it. Me Delano's Odyssey out of the sloughs of psychiatry is epic. Truly Epic. She is "unshrunk" now, and much happier for it. I also am happier, having escaped the clutches of a system that "disorders" everything.
So get the book!
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A little glossary:
- Syndrome: A collection of signs and symptoms that occur together and characterize a specific condition.
- Disorder: A disruption or impairment of normal bodily functions or mental processes.
- Bipolar I Disorder: Characterized by manic episodes, which are periods of abnormally elevated mood, energy, and activity levels. Individuals may also experience major depressive episodes.
- Bipolar II Disorder: Involves hypomanic episodes, which are milder forms of mania, and major depressive episodes. Individuals do not experience full-blown manic episodes.
- Cyclothymic Disorder: A chronic condition characterized by numerous periods of hypomania and mild depressive symptoms that do not meet the full criteria for Bipolar I or II. Also known as Bipolar III.
I would prefer that the three levels of Bipolar be called "syndromes" rather than "disorders." In my case, with appropriate understanding and practice, Bipolar II is a condition that I can take advantage of to experience a broader range of social interaction. Furthermore, I consider bipolar syndromes, regardless of severity, as exaggerations of the normal mood cycling that is inherent in the human condition. A doctor friend of mine (definitely not a psychiatrist; he's to sane to be one) explained it this way:
The scale of moods runs from zero to ten, from the lowest possible to the highest possible. Most people rock along in the 4-6 range, where 5 is "contented, neither sad nor excitedly happy". After a very fortunate event, such as a promotion, a marriage proposal or acceptance, or reaching a tough goal, we feel extra happy, even excited, getting into the range of 7 or 8 for a while. This can't be sustained for long, and we settle back to a 6, and then a 5. After a very unfortunate even, such as being fired, or the death of someone close to us, we feel very low, even depressed, in the range 2-3. Death of a parent, child, sibling or spouse causes us to experience grief, a solid 2 or even 1, for about a year. But this eases over time and we resume our usual "setting" near 5. A depressive person has a chronic setting near 2 or 3. A maniac is stuck at 7 or 8. Normal mood swings run between 3 and 7, though most of the time the 4-6 range is "home base". Bipolar II and Cyclothymia swing between 2 and 8, while Bipolar 1 ranges between 1 and 9. Hitting zero leads reliably to suicidal thinking and often a suicide attempt. Hitting 10 leads to both internal distress and social ostracization for being "too crazy". Extreme Bipolar I bangs these limits on a regular basis and probably does need medication.
There is also the matter of cycling frequency. Normal mood cycles last 3-12 months. Having a "blue mood" each winter is a sign of a 12-month cycle, emphasized or even triggered by seasonal changes. Rapid cycling is three months or less. I am a rapid cycler, which is common for Bipolar II. I have 4-8 depressive (or "quiet and reclusive") episodes yearly, and shorter periods of hypomanic mood (on the edge and extra social) in between. If I am in a quiet phase but must perform a social task such as giving a speech, I can do so, but I "pay the price" with the need to "hide out" for a number of days thereafter. When I am on an even keel or even hypomanic, giving a speech is no problem; it is a pleasure. I just have to keep myself in check when I am up; I tend to interrupt myself or lose track of a train of thought.
Perhaps all this is foreign to you. You may be solidly sane. I am so glad for that! If any of this rings a bell, recognize that you are still most likely close to normal, perhaps just "a little more than normal." Gravitate to friends or family who give you space without judgment. Be wary of psychiatry, but don't write it totally off. Sometimes it's needed. Just don't give up your autonomy to a shrink.




